Saw this on the news last night. My heart goes out to her. This dystonic reaction is the type of reaction I have had when I am in the middle of a bad episode of the neurocardiogenic syncope...it usually happens when I have been close to passing out, and is triggered by sensory overload and the stress that the body undergoes when the heart rate skyrockets and the blood pressure drops. The most recent reaction happened the last time I was in the ER which was the main reason they ordered the immediate Cat Scan and MRI. The ER doc did not understand the condition, and treated me like a drug user. It was frustrating because I couldn't talk and tell the Doctor that I: A) don't do drugs and B) have had these episodes in the past as a result of the Neurocardiogenic Syncope. He gave me a huge mega dose of Benedryl and I was amazed that it calmed down the episode and the seizure activity and I was able to talk again. It shocked me because my reactions would usually last for several days and none of my other doctor's had ever suggested a treatment other than reducing stress, and getting enough sleep. I took the Benedryl over the next couple of days and it kept the monoclonic seizure activity that usually remains after one of the episodes at bay. When I saw the Electrophysiologist, he told me during an episode of the neurocardiogenic syncope, high levels of Catecholamines (certain neurotransmitters) can cause dystonic reactions with seizure activity and loss of speech, ability to swallow, ect. It was the first time a doctor had explained what was happening in my body during those reactions. He also said that the Benedryl had worked because it would suppress the abundance of the Catecholamines in my system.
I hope that the young woman in this story is able to find a treatment to minimize the symptoms... and an answer to why she developed this condition in the first place. It is very tiring and frustrating when I have one of these reactions. I can't imagine living with it constantly as it appears she is...and it is horrible that for her this was most likely the result of an adverse reaction to a seasonal flu shot.
